Humanitarian Foundation BUDI HUMAN - Aleksandar Šapić
raises funds for Vanja Malović (2021)
Vanja was born on 13 May 2021 in Belgrade and she was a healthy baby. In the first month, her mother noticed that Vanja slept for a longer time than her older brother. In addition, she noticed that she was slow, that she did not move her arms and legs, but that she was progressing nicely, which was confirmed at the first medical examination.
The pediatrician noticed the same and suggested a physiatrist's examination. After that, the physiatrist suggested an examination by a neurologist, thus Vanja ended up in the hospital for a genetic test with a suspicion of spinal muscular atrophy.
Genetic analysis confirmed the suspicions of neurologists that this was a rare neuromuscular disease SMA1 (Spinal muscular atrophy type 1). It is an extremely severe and progressive disease that often has a fatal outcome. The disease is caused by a gene mutation and is manifested by the loss of basic life functions such as walking, digestion, swallowing and breathing. She is not able to hold her head but she moves her arms and legs.
The first step in her treatment is the medicine Spinraza. It is available in Serbia and Vanja is in the phase of receiving the first dose. It should slow the progression of this vicious disease.
A treatment that has proven to be very successful is Zolgensma gene therapy.
There is therapy, but due to the price, Vanja's family is not able to afford it and help their child, so they ask all good and humane people to help them so that their child gets therapy and thus slows down the progression of the disease.
Vanja needs funds for Zolgensma therapy and for travelling and accommodation costs.
For Vanja's victory! Let's be humane!
Let's help Vanja!
Type 1077 and send SMS to 3030
Type human1077 and send SMS to 455