Humanitarian Foundation BUDI HUMAN - Aleksandar Šapić
raises funds for Bogdan Jokićević (2018).
Bogdan is a boy from the first and controlled pregnancy. In the second month, problems occured when a pediatrician at regular check up noticed the sagittal ridge on his head and sent him to a neurologist in Kragujevac.
After the scanner was done, it was discovered that the fontanelle had grown and that the skull bones had started to grow, it was craniosynostosis. Doctors then suggested surgery at the Clinical Center in Belgrade, where Bogdan was diagnosed with Microcephaly and that the surgery was not needed.
After consulting several surgeons whose opinions were divided, however, parents decided to have surgery. But Bogdan did not have a scheduled surgery due to constant infections and after the third month, occurred epileptic seizures, stridor and generalized hypotonia.
In the eighth month, he had MR of head, after which the radiologist detected that Bogdan had a reduced brain volume. Then, at the Mother and Child Institute, he was diagnosed with vocal cord paresis which made his breathing difficult. Due to frequent infections and difficulty with breathing, he was implanted with tracheostomy and gastrostomy due to the absence of the ingestion reflex.
All genetic testing done in our country are negative. In March 2019, DNA material was sent to Barcelona for further analysis, the results have not arrived yet.
Bogdan cannot sit and hold his head, he is not able to follow moving objects with his look, and he moves his extremities poorly.
He needs physical therapies, respirators, aspirators, medications, supplements and medical supplies. Parents are asking for help so they can provide Bogdan with a better quality of life.
Let's make Bogdan's childhood easier! Let's be humane!