Boško Gugleta
Boško Gugleta

For Boško!

Description

Humanitarian Foundation BUDI HUMAN - Aleksandar Šapić

raises funds for Boško Gugleta (2021).

Boško was born on 14 January 2021 in Novi Sad. Pregnancy and birth went smoothly. When he was 3 months old, his parents noticed that he was much calmer than he should be at that age. Although poor mobility has been present since birth, it has always been considered  that children are different - some are more lively and some are calmer by nature. While they were remembering Dušan, Boško's older brother,  and watching his videos, their parents noticed a significant difference which immediately turned on the red alarm.

After numerous examinations and analyzes, their fears came true. Unfortunately, Boško was diagnosed with SMA 1 (spinal muscular atrophy type 1). It is a severe, progressive and neuromuscular disease, which can be fatal. The manifestations of the disease are progressive muscle atrophy and loss of vital functions, such as walking, digestion, swallowing and breathing.

Boško, this brave baby, began his struggle for life in his fourth month. The first step in his treatment is the medicine Spinraza. It is available in Serbia, and we hope that Boško will take the first dose soon. It should slow the progression of this vicious disease. After that he will need Zolgensma gene therapy that has proven to be highly successful treatment. However, this modern therapy, approved in 2019, is currently the most expensive in the world and is unaffordable for many people. For that reason Boško’s  parents invite all generous people to make their contribution and help them raise funds..

Boško needs funds for Zolgensma therapy, treatment abroad, rehabilitation, physical and occupational therapies, for laboratory analyzes, orthopedic aids, medical devices, for travelling and accommodation costs.

May Boško defeat SMA! Let's be humane!

Let's help Boško!

Latest payments

Mateja Mitic
30.07.2021
Unprocessed PayPal payment
For Beneficiary1032
2,00 EUR
SMS MTS 04/2022
15.06.2022
For Beneficiary1032
12.000,00 RSD
SMS A1 05/2022
13.06.2022
For Beneficiary1032
3.000,00 RSD
SMS CHF 02/22
09.06.2022
For Beneficiary1032
1.792,00 RSD
Anon.
02.06.2022
PayPal payment
For Beneficiary1032
2.127,00 RSD
SMS YETTEL 04/2022
30.05.2022
For Beneficiary1032
8.000,00 RSD
SMS MTS 03/2022
23.05.2022
For Beneficiary1032
15.400,00 RSD
DANIELA PETROVIĆ
17.05.2022
For Beneficiary1032
17,59 RSD
TIHOMIR KOSTRESEVIC
17.05.2022
For Beneficiary1032
1.000,00 RSD
SMS A1 04/2022
16.05.2022
For Beneficiary1032
7.000,00 RSD
MILAN PAUNOVIĆ
12.05.2022
For Beneficiary1032
5,00 RSD

Share

By inserting an Embed Code
on your Website:

COPY CODE

COPIED