Humanitarian Foundation BUDI HUMAN - Aleksandar Šapić

raises funds for Pavle Škorić (2019).

Pavle was born on 30 June 2019 after a properly controlled and maintained pregnancy.

When he was 7 months old, problems with strabismus arose, but doctors considered it common for this age. In the ninth month, there were serious problems with eating and bowel movements. During the following months, he lost weight and stopped developing his motor skills. Doctors suspected anemia, but blood test results did not confirm it.

At the age of one, Pavle started with detailed examinations and diagnostics. During the first visit to the physiatrist, hypotonia and strabismus were detected, and it was emphasized that they never occur separately but within a  general disease. The neurologist noticed the presence of involuntary movements, after which a blood sample was sent to Germany for further research regarding neurotransmitter diseases.

While the parents were waiting for the results of the findings, many other tests were performed. All the results proved to be correct, which confirmed the assumption that this was a very rare genetic disease that affects one in 50 million children, neurotransmitter disease.

Until now, Pavle has been treated at the Clinic for Rehabilitation, Dr. Miroslav Zotović, while in the meantime he exercised with his parents at home and started getting therapy. Progress has been made in a year. Pavle manages to sit firmly as well as to get up. He has the potential to walk but needs very intensive physiotherapy. Unfortunately, the hypotonia affected the muscles of his face and the speech apparatus, so Pavle has problems with eating and speaking. There is a chance for these muscles to be activated by adequate therapy through exercises and massages. It is also necessary to work with a speech therapist and a speech pathologist.

Watching Pavle practice hard and progress step by step, his parents are convinced that one day he will be able to walk and speak. Until then, they would like to provide him with all available treatments and necessary aids, which is possible only with the help of generous people.

Funds are needed for daily intensive physical and speech therapy, rehabilitation, supplements and therapy equipment.

For Pavle's better future! Let's be humane!

Let's help Pavle!