Humanitarian Foundation BUDI HUMAN - Aleksandar Šapić

raises funds for Vukan Stoiljkovića (2021).

Vukan was born on 6 August 2021. Both pregnancy and birth went smoothly and he was graded with 9 at birth.

Due to the weakness of the abdominal muscles, he underwent surgery for a inguinal hernia at the age of 2 months. By the third month, he looked like all other healthy children of that age, but after that, Vukan gradually stopped moving his legs and general muscle weakness occurred.

After numerous examinations and analyzes, his family obtained frightening results. Unfortunately, Vukan was diagnosed with SMA 1 (spinal muscular atrophy type 1). It is a neuromuscular disease, severe and progressive, and it  can be fatal too. The disease is manifested by progressive muscle atrophy and loss of vital functions, such as walking, digestion, swallowing and breathing.

At the age of 6 months, Vukan got the only available therapy  in Serbia, Spinraza, thanks to which he is able to swallow food and breathe more easily, but that is not enough. The only hope for Vukan's life is Zolgensma gene therapy. However, this modern therapy, approved in 2019, is currently the most expensive in the world and is unaffordable for the average person.

His family asks all generous people to help with their donations so that Vukan can win his battle for life.

Funds are needed for Zolgensma therapy, treatment abroad, rehabilitation, physical and occupational therapies, for laboratory analyzes, medicines, supplements, orthopedic aids, medical devices as well as for travelling and accommodation costs.

May Vukan defeat the SMA! Let's be humane!

Let's help Vukan!