Bogdan i Pavle Marjanović
Bogdan i Pavle Marjanović

For Bogdan and Pavle!

Description

Humanitarian Foundation BUDI HUMAN - Aleksandar Šapić

raises funds for Bogdan (2007) and  Pavle (2015) Marjanović.

Bogdan and Pavle suffer from a rare and severe hereditary disease - Lesch Nyhan syndrome.

Children are mentally preserved, happy and sociable boys  but they are 100% disabled. The initial diagnosis for Bogdana was cerebral palsy, and only 6 years after the five-day blood-urinating and very poor kidney function, he  was diagnosed with Lesch Nyhan syndrome.

Since then, he regularly takes a  therapy for kidneys and for lowering the uric acid. Now he has a chronic kidney disease while kidneys function is also reduced .

Lesch-Nyhan syndrome is a severe, rare (1: 380000) hereditary disease, caused by the mutation of the HPRT gene. It is characterized by an extremely large auto-aggression, people with this syndrome often bite nails, and even the fingertips or the lower lip (sometimes they even ask to be tied to feel safer). They have no control over the muscles,  a lot of unwilling movements, they  cannot hold their bodies, very often they have stones in the kidneys.

The youngest brother Pavle has the same diagnosis as Bogdan. From his fourth month, he receives the same treatment as his brother, but the examination found that his kidneys were deteriorating too...

Brave boys need to go to hippotherapy, other therapies, defectologists, and speech therapists. It is also necessary to purchase the medicines ...

Help Bogdan and Pavle! 

For Bogdan and Pavle's better childhood! Let's be humane!

Latest payments

SMS YETTEL 05/2022
29.06.2022
For Beneficiary373
1.200,00 RSD
SMS GLOBALTEL 05/2022
28.06.2022
For Beneficiary373
200,00 RSD
BILJANA SARCEVIC
24.06.2022
For Beneficiary373
500,00 RSD
KATARINA PANTIĆ
20.06.2022
For Beneficiary373
2.000,00 RSD
SARA DJURDJEVIĆ
16.06.2022
For Beneficiary373
200,00 RSD
SNEŽANA JOLOVIĆ
16.06.2022
For Beneficiary373
550,00 RSD
MAJA TODIC
15.06.2022
For Beneficiary373
500,00 RSD
SANJA VURUNIĆ
15.06.2022
For Beneficiary373
700,00 RSD
SMS MTS 04/2022
15.06.2022
For Beneficiary373
600,00 RSD
SMS A1 05/2022
13.06.2022
For Beneficiary373
600,00 RSD

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