Humanitarian Foundation BUDI HUMAN - Aleksandar Šapić
raises funds for Janja Stojanović (2018).
Janja was a child from the second, regularly checked, pregnancy. She was born in the fortieth week. She did not breathe for two minutes at birth, so she was intubated and transferred to the neonatology department, where she spent her first month in the incubator.
Over the next year and a half she was treated for hypotonia with numerous physical therapies. Only after a magnetic resonance imaging in September 2019, she was finally diagnosed.
Janja suffers from Joubert syndrome. That is, the underdevelopment of the cerebellum and the brainstem. In addition to Joubert syndrome, she also has polydactyly (six fingers) and right eyelid ptosis, for which she had surgery when she was only three months old.
Janja is not able to sit and walk, she partly holds her head upright, but she is a cheerful and happy child, full of life. She rejoices greatly in her brother and other children's company, but she cannot play with them. She is quite positive and smiling, she tries hard and everyone wants her to get her brother by the hand as soon as possible and go to the childhood world of growing up where she should be.
In order to stand up on her own feet, she needs daily physical therapy treatments, spa treatments, as well as working with a speech therapist, a defectologist, a somatopedist, a psychologist, an educator, and all these treatments require a lot of money.